Dementia Registry gathers momentum

Dementia Registry gathers momentum

L. to R. Dr Thi-Yen Hill, A/Prof Gideon Caplan, Research Manager Robert Welschinger and Dr Stephanie Ward from the Cognitive Disorders Clinic at The Prince of Wales Hospital attended ADNeT Registry training held by program manager Kasey Wallis on Monday 22 June.

Despite delays due to the coronavirus pandemic, the roll-out of the ADNeT Dementia Clinical Quality Registry is gathering momentum.

As with other clinical quality registries, the purpose of the ADNeT Clinical Registry is to become an effective tool for quality improvement in the diagnosis and care of dementia in Australia by identifying variations in clinical practice, benchmarking service providers and monitoring the effectiveness of treatments and care.

Following ethics approval for the Registry and the endorsement of a minimum dataset, four sites have now completed training. The Queen Elizabeth Hospital, Adelaide, Procognition in the NSW Central Coast, The Prince of Wales Hospital in Sydney, and SpARC Memory Clinic in SA have already commenced data collection.

These four sites give the Registry a solid start. By the end of 2020, we expect to have 15 pilot sites providing data, covering a good representation of geographical areas and demographics.

Once the pilot is completed, we aim to have over 50 memory clinics and then wider community participation in the registry.

For more information, visit https://www.australiandementianetwork.org.au/clinical-quality-registry/ or contact the ADNeT Registry Program Manager on email ADNeT.Registry@monash.edu or phone 1800 314 421.