We are excited to announce that Austin Health and the Caulfield Cognitive Dementia and Memory Service (CDAMS) have both joined the ADNeT Registry.
Our sincere thanks to the wonderful team at Caulfield CDAMS lead by Elizabeth Rand (pictured below) for working closely with our ADNeT Registry team in developing a local database to support sustainable data collection for the ADNeT Registry.
This brings us to a total of 7 Australian sites contributing data to the Registry, with an additional 7 recently receiving governance authorisation and will commence data collection shortly. We are also excited to have received expressions of interest from an additional 10 memory clinics/services. We are planning to approach around 50 memory clinics/services by the end of 2023 with an estimated recruitment of at least 10,000 participants.
Watch this space as we endeavour to bring in more sites in the near future!
The ADNeT Clinical Registry collects clinical data from participating sites to benchmark clinical practice in the diagnosis, management and care of people with either dementia or mild cognitive impairment. Information from Registry participants and their caregiver are also collected. Participating sites will gain a better understanding of their clinical population and practice and inform quality improvement initiatives.
If your clinic or service would be interested in participating in the ADNeT Registry please email our Registry Program Manager at ADNeT.Registry@monash.edu