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Project: Young-onset dementia: pathways to care, gaps, barriers and positives

The Young Onset Dementia (YOD) Special Interest Group, supported by ADNeT, is hoping to collect data through surveys from those treating or living with YOD in order to identify gaps and barriers in the care pathway. The findings will help advocate for improved and tailored services.

What is this research about?

Young-onset dementia is a type of dementia that starts before the age of 65, affecting around 5-10% of all dementia cases. In Australia, about 28,000 people are estimated to have YOD. While less common than dementia in older adults, those with YOD often face delays in diagnosis and struggle to access appropriate support services.

Managing the cognitive, behavioural, and functional changes that come with YOD requires high-quality, evidence-based services, which are currently fragmented and unequal in Australia.

Read more about the project here.

There are five questionnaires you may choose to participate in by using the links or scanning the QR codes below:

The results of the project will be disseminated via websites, social media and public presentations. They will also be published in scholarly journals.